@nayr69sg
I remember you are a doctor in this forum from my occasional browsing of this forum. I also recall Charlie did mention the same to me in my early days when I participated in this forum.
I have also asked a couple of friends who are doctors, but I am told the prognosis isn't great. Nevertheless I would like to hear your views.
Some pertinent facts:
1. Person X is in his mid fifties.
2. A couple of weeks ago, he crashed his car into my condominium carpark wall while parking his car. When I found out, I had thought (then) it's probably a normal accident. Sometimes when we are mentally exhausted or extremely tired from work, accidents do happened.
3. We went for a dinner together a couple of days ago. We only had a glass of red each. Surprising, he felt giddy after dinner and while walking to my car, he lost his balance and fell. No serious injuries were sustained. Just some bruising and scratches on his arm.
4. This morning, I received a call from Person X. He told me he had gone to see a neuro specialist and did some sort of brain scan.
5. The diagnosis, as he said over the phone is Cerebellar Degeneration.
6. I was too busy with back to back zoom and conference calls. I could only speak to him for no more than a couple of minutes.
7. I have tried calling him since 7pm tonight and his mobile is not responding, which is the first time this has happened since I got to know him for a couple of years now.
8. Curious, I searched the internet since 8pm and realised now that Cerebellar degeneration is a serious illness.
9. If I am not wrong from what I read on the internet, it's the loss of the ability to control one's movements, muscles, etc due to some part or parts of the brain which are degenerating. Consequently with time, the patient cannot even eat, as food will not be able to be pushed into the stomach by the failing muscles. And the chances of life threatening pneumonia is high because food gets stuck and decays in the respiratory system. Eventually, the patient will need life support and a decision will have to be made.
10.. There doesn't seem to be a cure to this disease.
My questions:
1. From the point of a Cerebellar degeneration diagnosis to the point of not being able to perform basic tasks eg. eating, walking, bathing, changing clothes, etc, how fast is the deterioration process? 1 year or 5 years or 10years? Doctor friends whom I have managed to contact tonight said it depends (as usual, the non committal type of answers of professionals).I am told that It could be months or years. Is this true? Or rather what's the probability of a fast degeneration vs a slow degeneration?
2. From the psychological angle, how do I as good friend engage with a Cerebellar degeneration sufferer?
3. Any other useful and practical advice would be most welcomed.
Thanks in advance.
Apologies for the long post.