When The New Paper visited Madam Norleen Osman's one-room flat in Ang Mo Kio last week, the child sleeping in the middle of the room started to cry. Then she started to scream.
The housewife, 33, felt the need to apologise on her four-year-old daughter's behalf. "She's on morphine right now. She's very cranky," she said.
Her daughter, Adlea Ry'Kyla Muhammad Ghazali (above), known as Nur, has myocarditis - a rare heart condition. As a result, her kidneys have deteriorated and she has a bloated abdomen, which presses against other organs, causing breathlessness, severe pain and fever.
The only hope for Nur is a new heart, but there is no heart transplant programme here for children as young as Nur.
Now, her parents are looking overseas to try and get her a heart transplant.
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According to Mdm Norleen (Nur's mother), the doctors at KKH said that there is almost "no-hope" for Little Nur to survive. They said she has less than a month to live.
Well, we are not going to set an expiry date on this poor child or say that Nur has "no-hope" to live, but we need your help.
We are looking to form a fundraising team to help us run a two-weeks fundraising campaign for Little Nur. We not only need supporters of this fundraising effort to share info about how to donate money to "Little Nur's Heart Fund" on social networks, but we need people who can also help us with the followings;
- liaison with hospital (work closely with Mdm Norleen)
- writers (local/ overseas newspaper) to share Nur's story
- business owners who can solicit and influence donations from other business owners to also chip-in in the cause
This is what we can think of right now, as we need more help, we'll post it here.
Meantime, please chipin, everyone. Click on the ChipIn! button on the right side of this page to submit your donation. Little Nur needs your help.
Our goal is to raise USD$200,000 for Little Nur's Heart transplant operation.
Meantime, any suggestions/ comments is very much encouraged in here.
We are hoping to receive support from philanthropic bodies around the world, so let's try to post information about this effort in English so that they too can know what's going on with Little Nur and know how to help.
Thanks for taking the time to read this and probably thinking about how to help. We're running out of time, so we don't have time to plan fundraising events/ projects... but just a donation drive like this.
We look forward to have your support, everyone.
Yours,
Rima McDonald
