[Video] - Pitiful little girl dies from Batten disease, a terrible genetic condition

[UltimaOnline]

https://en.wikipedia.org/wiki/Batten_disease

 

[UltimaOnline]

https://www.wired.co.uk/article/milasen-aso-gene-therapy

 

[face the facts]

heartrending....RIP

 

[GOD IS MY DOG]

https://en.wikipedia.org/wiki/Batten_disease

https://www.wired.co.uk/article/milasen-aso-gene-therapy

i followed her story years ago................share her story to raise funds................i thought she had the therapy and was okay ??

in any case, her suffering ended.............

 

[SBFNews]

Sad.