• IP addresses are NOT logged in this forum so there's no point asking. Please note that this forum is full of homophobes, racists, lunatics, schizophrenics & absolute nut jobs with a smattering of geniuses, Chinese chauvinists, Moderate Muslims and last but not least a couple of "know-it-alls" constantly sprouting their dubious wisdom. If you believe that content generated by unsavory characters might cause you offense PLEASE LEAVE NOW! Sammyboy Admin and Staff are not responsible for your hurt feelings should you choose to read any of the content here.

    The OTHER forum is HERE so please stop asking.

Jibuy Greedy Pharma Co! One Dose of Drug costs S$136,163

AhMeng

Alfrescian (Inf- Comp)
Asset
Father Used Medical Funds That Can Prolong Son's Life On Booze, Women & Drugs

disorder-696x364.jpg
Image: FocusOn News

You’ve heard of children stealing from their parents but have you heard of parents who steal from their children?

Okay, maybe once when this iconic anti-gambling advertisement gained popularity back in the days.

But seriously, children under the age of 21 need an adult’s approval for almost anything in Singapore at least.
From school activities (i.e. camps, overseas trips) to making important medical and life decisions, parental consent is required because these kids are deemed as vulnerable and require protection from someone more experienced to act in the child’s best interests.

Unfortunately, some parents let their own interests cloud their judgement.

A man spent his son’s medical fund on personal interests

According to Mirror UK, an unemployed father of 2 in Salvador, Brazil splurged more than £130K(approximately S$218,429.76) meant for his toddler’s costly medical treatment on alcohol, drugs and prostitutes.

Friends and family had helped to raise a total of £216K (S$362,929.45) through a year of crowdfunding campaigns (i.e. online appeals, auctions and donations).

It clearly landed in the wrong hands.

Toddler Suffers From Rare Disease
The man in question, Mateus Alves is a father to a 19-month-old toddler named João Miguel.

Jo%C3%A3o-Miguel.jpg
Image: FocusOn News

The 19-month-old reportedly suffers from Spinal Muscular Atrophy (SMA), a rare degenerative neuro-muscular disease.

According to the Muscular Dystrophy Association, SMA affects the part of the nervous system which controls voluntary muscle movement.


The nerve cells which control muscles are primarily located at the spinal cord. The thing with inactive muscles is that they’ll gradually shrink which is what’s happening to poor João.

Each dose of medicine costs up to £81,000

To save João, the plan was for Alves to purchase three doses of Spinraza (also known as Nusinersen), the first approved drug to treat his son’s disorder.

Spinraza.jpg
Image: SMA News Today

João required six rounds of the drug injected near his spinal cord.

Which is now a problem because each dose costs up to up to £81,000 (estimated sum of S$136,163.38).

However, more than half of the funds raised for that purpose is gone, and now, it is uncertain what will happen to the 19-month-old.

The man was eventually arrested by Police

Fortunately, the Police managed to catch 37-year-old Alves on 22 July (Monday) at a local five-star beachfront hotel where he had allegedly been hiding lavishly for more than a month.

Alves.jpg
Image: FocusOn News

According to the Police chief, the 37-year-old claimed that he had “spent the money bingeing on women, drinks and drugs” during his arrest.

To make things worse, Investigators revealed that there were indications that he had plans to open a brothel in the city with a female business partner.
It was reported that Alves had allegedly spent £10,800 (about S$18,152.42) on recruiting women.

Mirror UK reported that the funds meant for their younger son was split into four savings accounts with Alves and his wife, Karine overseeing two accounts each. Upon hearing news of her husband’s behaviour, the housewife was undoubtedly overcome with disappointment.

Alves-2.jpg
Image: FocusOn News

The outcome

37-year-old Alves has been charged for fraud.

He had tricked people into donating money to his son and using it for another purpose.

In addition, he will be dealt with accordingly for abandoning his wife and two children. As a result, he could be charged with up to five years per penalty.

As for his toddler, many locals as well as Premier League goalkeeper, Victor Bagy chipped in to save the 19-month-old toddler.

We sure hope João will be strong enough to pull through and kick his dad’s ass in future!
 

MenghidupKehadapan

Alfrescian
Loyal
I know this medicine. A family friend of ours has a son who was diagnosed with this. His was a mild case and only started afflicting him 3 years ago. Only started to walk at 2 yrs but gradually lost the ability. The children’s hospital was great, with Medicare covering every cent of all the battery of tests and specialists he had to see. Didn’t even have to touch private health.

Catholic family, Dad and Mom prayed long and hard for an intervention that finally came through in the form of a certain diagnosis of a form of SMA that afflicts children. That very month, this drug was approved to be on PBS, meaning it would only cost the family a maximum of A$30+ Each shot. Treatment starts with a monthly shot for 3 months then every quarter, IIRC, for the rest of his life.

Not my intent to create an Oz vs. Sg debate here, but now imagine Singapore’s medical system and Medicare. In Sg, the price of the medicine would mean you either have to be super rich to save your beloved child or up to a point where your medisave runs out, credit cards maxed out, begged from every friend and family, borrowed from every Ah Long, and then be left with no choice but to see him waste away and his body shut down in a slow death. Even with subsidies, this medicine will break your bank and destroy what little quality of living you might still have.

I used to loathe having to pay 40%+ taxes as a 457 without the hope of getting a single cent in tax refund, and then not qualifying for any family tax benefits from Centrelink when I finally got my PR. But after hearing their story, it brought realisation to how it funds Medicare that then helps many more families I’ll never know, having to live with a member afflicted with other forms of rare diseases.

That opened up a window that I feel so humbled to see through, for once, how my taxes works to help those that truly need it.
 

hofmann

Alfrescian
Loyal
I know this medicine. A family friend of ours has a son who was diagnosed with this. His was a mild case and only started afflicting him 3 years ago. Only started to walk at 2 yrs but gradually lost the ability. The children’s hospital was great, with Medicare covering every cent of all the battery of tests and specialists he had to see. Didn’t even have to touch private health.

Catholic family, Dad and Mom prayed long and hard for an intervention that finally came through in the form of a certain diagnosis of a form of SMA that afflicts children. That very month, this drug was approved to be on PBS, meaning it would only cost the family a maximum of A$30+ Each shot. Treatment starts with a monthly shot for 3 months then every quarter, IIRC, for the rest of his life.

Not my intent to create an Oz vs. Sg debate here, but now imagine Singapore’s medical system and Medicare. In Sg, the price of the medicine would mean you either have to be super rich to save your beloved child or up to a point where your medisave runs out, credit cards maxed out, begged from every friend and family, borrowed from every Ah Long, and then be left with no choice but to see him waste away and his body shut down in a slow death. Even with subsidies, this medicine will break your bank and destroy what little quality of living you might still have.

I used to loathe having to pay 40%+ taxes as a 457 without the hope of getting a single cent in tax refund, and then not qualifying for any family tax benefits from Centrelink when I finally got my PR. But after hearing their story, it brought realisation to how it funds Medicare that then helps many more families I’ll never know, having to live with a member afflicted with other forms of rare diseases.

That opened up a window that I feel so humbled to see through, for once, how my taxes works to help those that truly need it.

All we get for our tax dollars are fancy glass domed vanity projects and billion dollars undersea expressways.

Singapore has sleep walked its way from socialism to facism over 50+ years. The supremacy of the state trumps even the rights of the citizens.
 

Hypocrite-The

Alfrescian
Loyal
Should have Soylent Green the baby in the 1st place..it's more humane and the kid won't be a burden to himself n his family. And some ppl should not be allowed to breed
 

rushifa666

Alfrescian
Loyal
I know this medicine. A family friend of ours has a son who was diagnosed with this. His was a mild case and only started afflicting him 3 years ago. Only started to walk at 2 yrs but gradually lost the ability. The children’s hospital was great, with Medicare covering every cent of all the battery of tests and specialists he had to see. Didn’t even have to touch private health.

Catholic family, Dad and Mom prayed long and hard for an intervention that finally came through in the form of a certain diagnosis of a form of SMA that afflicts children. That very month, this drug was approved to be on PBS, meaning it would only cost the family a maximum of A$30+ Each shot. Treatment starts with a monthly shot for 3 months then every quarter, IIRC, for the rest of his life.

Not my intent to create an Oz vs. Sg debate here, but now imagine Singapore’s medical system and Medicare. In Sg, the price of the medicine would mean you either have to be super rich to save your beloved child or up to a point where your medisave runs out, credit cards maxed out, begged from every friend and family, borrowed from every Ah Long, and then be left with no choice but to see him waste away and his body shut down in a slow death. Even with subsidies, this medicine will break your bank and destroy what little quality of living you might still have.

I used to loathe having to pay 40%+ taxes as a 457 without the hope of getting a single cent in tax refund, and then not qualifying for any family tax benefits from Centrelink when I finally got my PR. But after hearing their story, it brought realisation to how it funds Medicare that then helps many more families I’ll never know, having to live with a member afflicted with other forms of rare diseases.

That opened up a window that I feel so humbled to see through, for once, how my taxes works to help those that truly need it.
Why is calling a shithole a shitholr going to be anythijg but the truth?
 
Top